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The Cancer Problem

Cancer has the potential to   affect every aspect of an individual's life (e.g. physical, psychological, social, economic and spiritual domains) with many documented post treatment unmet needs. The  needs of cancer survivors are multifaceted and complex with some needs being common among different cancer types, while others are cancer-specific. Given the sheer number of cancer survivors and the cumulative prevalence of individuals with long-term effects of cancer and cancer treatment, there is an urgent need for healthcare systems which can accommodate the growing need for long-term follow-up to ensure good quality of life and functioning, ability to return to work and independent living.

Our Aims & Approach

The  main aim  of the INE-CSC COST Action is to systematically  support the sustained translation of evidence-based interventions into routine clinical practice as part of a cross boundary, systems level cancer survivorship pathway and ultimately enhance the health and wellbeing of cancer survivors. Through this Action a sustainable network of researchers, clinicians, patients, policy makers and wider stakeholders will integrate the emerging knowledge, on cancer survivorship, digital health solutions and implementation science, to support a sustainable model of care for patients on their cancer journey.

Using an Implementation Science lens, this COST Action seeks to understand and address the contextual factors that impact on the sustained implementation of cancer survivorship in a European context. Barriers to the implementation of cancer survivorship care can arise at different levels and at the intersection of the following four levels:

Individuals and the Public

Health-care professionals

Health-care organization

The
Environment

Our Mission is Enabled by Working Groups

The COST Action will be facilitated through the formation of an International/Pan-European network of stakeholders including healthcare and IT professionals, research experts, quality improvement and implementation science specialists, policy makers, cancer survivors and patient organisations.

Working Group 1

Mapping & Prelminary Models

Working Group 1

WG1 will map and make preliminary models outlining the varied contextual factors impacting on the implementation of cancer survivorship care into routine support cancer survivorship care in Europe. WG1 will report on similarities and differences in contextual implementation factors, implementation strategies, mechanisms of action, implementation outcomes in the context of implementation of cancer survivorship care on a localized basis and national basis.

Working Group 2

Digital Solutions

Working Group 2

WG2 will map and make preliminary models outlining the contextual factors impacting on the implementation of digital solutions to support cancer survivorship care into routine practice in Europe. Digital/electronic health solutions will include electronic patient reported outcome data capture, virtual care models, artificial intelligence (AI) and digital solutions developed through COVID-19.

Working Group 3

Implementation science

Working Group 3

WG3 will use the information gathered by WG1, WG2 to develop an integrated implementation science theory-based framework and toolkit to support the multilevel implementation of evidence-based cancer survivorship care. The aim of the framework and toolkit is to support the initial and sustained implementation of survivorship care thus substantially increasing post cancer lifespan and wellbeing.

Working Group 4

Capacity building, dissemination & sustainability

Working Group 4

WG4 is the capacity building, dissemination and sustainability WG. This group will have a particular focus on capacity building, the dissemination of the information gleaned through network activities, and supporting the sustainability of engagement in the network.